I was wondering if it's normal to feel like this - you get good days which are great and then when you get a bad night/day it just drops the mood to an all time low?? Does this flu like feeling and fatigue come and go all the time too? I hated having to tell my wee boys I couldn't take the dogs out with them and my husband as I am absolutely shattered and my legs feel like lead!!!!!!!!!!

Not a nice feeling - hopeless or even helpless are the words.

Lisa

Hi Lisa,

I feel hopeless ALOT!

This has become the norm for me and I am trying to learn that we are not hopeless or helpless, we didn't ask for this awful disease and we are still the same person albeit having to live life in a different way. It is so hard to get this mentality and I am on antidepressants as I was so low, maybe this could be an option for you if you are feeling like this all the time.

I hope that you are ok and am sending you lots of (pain free) hugs xxx

Hello Lisa

Ra does like to play on our emotions/feelings/joints/pain.
These feelings go hand in hand with our ra live BUT please don't get hung up in the cants/not able to etc .....always another day.

The way my hubby and I have got over me not doing many walks together is he takes our little one and turns it into their tine together, and either I stay at home making a meal/pudding/cake/do housework with some of 'me' time so life isn't about the negatives and it's about all of us adapting.

I have 2 dogs and need to walk them more - hubby does since my knee op although I've tried very slowly with a walking stick (dogs taken me out!)

Tuen it into say playing a game on for example a wii together or watching a film and microwaving some popcorn or going to the cinema together.

Since ra I've learnt to adapt and not be down with ra.

Have you joined a NRAS group for support/chatter? Or ring the members NRAS helpline to be put in touch with someone in your area, obviously it's not everyone's cup of tea.

We have a heat wave coming according to the weather guys.....get your vit C and body topped up Hun!

Jane
Xxx

I know what you mean! Got up this morning feeling not too bad then at lunchtime, Wham - out of nowhere - felt so tired I had to sleep for 2 hours - would have been longer if I had not forced myself to get up.